Day 28:
Clinic in the morning to check my levels. I was low on magnesium and was given two IV bags while there. My counts were steady but not showing significant growth. WBC 3.4, RBC 35, platelets 34, and my neutrophils were in the 2,000 range. The nurse also sent me home with a new prescription for magnesium. I ended the visit with the mandatory chest x-ray.
Day 29:
I had taken my cyclosporine by accident the day before and I had to go back to the clinic for a quick blood draw to test my levels. Came home and slept until 1:45p and felt pretty blah. I still needed to use the bathroom often and it was annoying and painful. I ached all day and felt as though I had the flu with sore bones and joints.
Day 30:
Stayed home as it was a free day from the clinic and slept all day. I felt better in the evening, as usual, as was able to venture out and go to the grocery store with my mom. I used an electric cart and seemed to handle the outing well. Getting out and about definitely helps with the mental state of mind.
Day 31:
Clinic in the morning to check my counts. The nurse wanted me to stop taking a blood pressure medicine, a liver pill I had been taking, and Reglan - a drug used to help motility of food. I was glad to hear that I could start weaning myself off of some of the drugs. I was given a liter of fluid to help relieve the UTI symptoms as they were still flaring up. It seems each day is a guess on whether or not my bladder wants to behave itself or not. I had my port cleaned and changed as has become the weekly routine. Thankfully, having it has not been a major hassle as I don't even notice it is there half the time. I worried at first that it would be a constant itchy reminder that I had three ports hanging out of my chest, but it has been the least of my worries.
I also informed the nurse that I noticed spots in my vision - little black floating dots. They don't occur all the time but off and on. An eye test was to be scheduled soon to check it out and make sure it was nothing more than all the medication I was on. I was told the medication could affect my vision.
Because I was still having trouble getting fluids down me - water would just sit on my stomach like a rock - the nurse advised me to start getting fluids at home with an IV drip. Walgreen's Home Infusion services would deliver bags of fluid to the apartment and I would simply have to hook a bag up to my port and let it do its thing.
I had a bone marrow biopsy at 1:30p and it was very uneventful. Asking for the full dose of anesthetic is definitely the way to go. The results should show what percentage of donor my marrow had become - how engrafted my transplant was.
Day 32:
Felt pretty well in the morning, a rarity. I tried to help my mom make breakfast but kept getting over heated and had to sit down. I started my first bag of fluids at 10:00a. My dad flew in and surprised my mom for her birthday and it was good to have company around. We had lunch around 2:00p and it felt like I swallowed a rock. My stomach was heavy and ached the rest of the evening, but I did manage to eat a light dinner. The night was miserable as I spent it going to the restroom every 45 minutes to an hour. I really needed the medicine for my bladder to start working.
Day 33:
I woke up early and started another bag of fluids at 6:00 and it finished by 9:30. I figured out how to run the line a little faster that way I wouldn't be dragging around the IV pole every time I had to go to the bathroom. I felt nauseated at 7:00a and took a phenagren but was still feeling poorly at 9:30a. By ten I had vomited up all the food from the day before. I felt weak and drained the rest of the day and stayed home all day. Movement did not help my stomach at all and I wanted to stay as still as possible.
Day 34:
Because of the rough time my stomach had the day before, I skipped breakfast and ate soup for lunch. UTI symptoms improved and I only had to go every two hours instead of hourly. Still felt poorly and weak and by 9:40 that night, I had thrown up the days' food. Food and water were still not my friends.
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