My mouth was still sore and my gums still swollen up over my teeth. My throat had become very dry and I found it hard to swallow.
A representative from the Vanderbilt pharmacy came to my room to show me how to administer IV infusions to myself while at the apartment. Two drugs, Vancomycin and Micafungin had to still be administered into my port and she showed me how to clean my 'hubs' with alcohol first before attaching the tubing. 'Scrubbing the hub' for fifteen seconds helped to remove potential opportunities to get an infection. I also had to flush the line with saline and once the transfusion was complete fill the hub with Heprin - a solution used to prevent clots in the hub. I got the feeling I would be my own mini-nurse and it was a tad stressful. I was tired during the entire explanation and just thought I needed to get a good nap in. It was not to happen.
When I finally arrived at the apartment around 4:00p my dogs were happy to see me but I soon realized I did not have the energy I needed to be around them. I spent most of the evening getting in and out of bed trying to feel better. The shakes came back in full force and my stomach cramped with nausea.
I made myself take a bath around 9:00p and noticed the rash on my arms had spread to my trunk, back and down my thighs. I started the antibiotic Vancomycin procedure at 9:30 and premedicated for the cyclosporine I would have to take at 10:00p. When 10:00p rolled around my pills were so many and so large, I had to drink a bunch of water to get them down. Less than a minute after swallowing them all, I threw everything up I had eaten that day; peaches from the morning and the undissolved pills I had just swallowed. A combination of the spreading rash, the vomiting, the shakes, and just simply feeling awful led me to decide we definitely needed to call the doctor. It was quickly decided by the on-call physician that I needed to return to the hospital. Only six hours of freedom before I was admitted again to the hospital. When I got to my new room, I noticed an awful bug had made its way into my space. I had to wait half an hour in a small family room for them to completely clean the new room again. Misery knew no end that night. It was awful. And it wasn't over.
When I finally arrived at the apartment around 4:00p my dogs were happy to see me but I soon realized I did not have the energy I needed to be around them. I spent most of the evening getting in and out of bed trying to feel better. The shakes came back in full force and my stomach cramped with nausea.
I made myself take a bath around 9:00p and noticed the rash on my arms had spread to my trunk, back and down my thighs. I started the antibiotic Vancomycin procedure at 9:30 and premedicated for the cyclosporine I would have to take at 10:00p. When 10:00p rolled around my pills were so many and so large, I had to drink a bunch of water to get them down. Less than a minute after swallowing them all, I threw everything up I had eaten that day; peaches from the morning and the undissolved pills I had just swallowed. A combination of the spreading rash, the vomiting, the shakes, and just simply feeling awful led me to decide we definitely needed to call the doctor. It was quickly decided by the on-call physician that I needed to return to the hospital. Only six hours of freedom before I was admitted again to the hospital. When I got to my new room, I noticed an awful bug had made its way into my space. I had to wait half an hour in a small family room for them to completely clean the new room again. Misery knew no end that night. It was awful. And it wasn't over.
Keep fighting - and keep faith - baby steps and one heartbeat at a time....you shall overcome - love and continued prayers and a lot of positive energy headed your way.......LOVE YOU!
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